Normal?????

Well the big news from the the clinic in Monday was that I now have a NORMAL INR at 1.2. First time I've heard that for a while. No bilirubin results as bloods working a week behind. The doc is happy that other results are going in the right direction.

The doc reduced my steroids to 20mg - getting there!

My insulin dose is therefore going down too.

The newest thing I'm facing is ankle, leg and hand swelling. It's worse than normal and the diuretics aren't touching it.  When I get warm / hot (most of the time) it gets much worse :-(

I am doing a bit more and thus face greater tiredness. Finding the balance is hard!!!

But then we went to fab batmitzvah at the Cumberland in London and we are currently at the Legoland hotel! Gemma is tour guide here so I will slowly make my way to mini land and gaze at those amazing Lego models of buildings! I bet I find some yellow ones!

We are then going to get some country air In The new forest. Alex is worried that I'll make it into a field trip - good news for her - we're not staying at the youth hostel!!!

Other news includes that I had a colour contrast ct scan last Friday - lots of hanging around. Maybe get results at clinic next Monday.

Lunch (Or breakfast in mark's case !) was at a gastro pub in belsize park - very nice!!! What will next Monday hold???

Debbie x